How has love shaped your world?
Rare Disease
Stories
read more
Ken Jaques: Combining Science And Woo For Health
Is it what we’re eating Is it what’s eating us?
Art Estopinan: A Child With A Rare Disease
Would you move the world to save your child?
Reflections on Thanksgiving
How did Piglet get to be so wise?
Cynthia Toussaint: Healing Through Expressive Therapy
What do you want out of life? “I’m not going to look for happiness, I’m going to look for meaning.”
Susan Love, MD: Surgeon, Patient, Visionary
“It will all work out in the end.”
Caregiving For A Child: Mary Beth Collins
“Take on that attitude of gratitude.”
Bennett Barrow: RareGuru for Rare Disease
“Being rare…it’s tough for both the patients and the medical community.”
Caregiving, Loving, and Living: Ronna Kennedy
“Life all of a sudden is very precious.”
Peter Lloyd: Racing For Life
“Don’t fear the unknown. The unknown can be amazing.”
Sarah Dransfield: One Leg, One Amazing Life
“It (cancer) changes you massively, but I think it’s changed me for the better.”
Pat Shannon: Ridin’ On With Rare Cancer
A diagnosis of rare Stage 4 cancer didn’t stop Pat Shannon. Instead he set out on a continental motorcycle trip, a trip of a lifetime.
Recent Comments