What do you want out of life? “I’m not going to look for happiness, I’m going to look for meaning.”
Rare Disease
Stories
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Susan Love, MD: Surgeon, Patient, Visionary
“It will all work out in the end.”
Caregiving For A Child: Mary Beth Collins
“Take on that attitude of gratitude.”
Bennett Barrow: RareGuru for Rare Disease
“Being rare…it’s tough for both the patients and the medical community.”
Caregiving, Loving, and Living: Ronna Kennedy
“Life all of a sudden is very precious.”
Peter Lloyd: Racing For Life
“Don’t fear the unknown. The unknown can be amazing.”
Sarah Dransfield: One Leg, One Amazing Life
“It (cancer) changes you massively, but I think it’s changed me for the better.”
Pat Shannon: Ridin’ On With Rare Cancer
A diagnosis of rare Stage 4 cancer didn’t stop Pat Shannon. Instead he set out on a continental motorcycle trip, a trip of a lifetime.
Yvonne deSousa: Giggles Are Good For You
“A day without sunshine is like, you know, night.” ― Steve Martin
Cameron Auxer: When Bodies Break
Stories of digging deep to survive and even prosper
Art Estopinan: The Hunt For A Cure For A Rare Disease
Finding a path for a rare childhood disease
Cynthia Toussaint on Life, Healing and Helping Others
An actress, a TV role, then an injury…













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